News and presentations from today's conference focusing on Information Sharing and Caldicott Principles in the health and social care of children and young adults. Reflecting on developing your role in improving communication and information sharing around children and young people whilst ensuring patient confidentiality.
Putting personal experience first
Imogen Voysey
Patient Leader
• ensuring engaged, informed individuals and carers
• improving information sharing with relatives and carers
• ensuring young people understand when their information can be shared
• putting personal experience first
Imogen started the day by talking about her personal experience with mental health and being hospitalised at the age of 16.
Imogen discussed what is right in terms of sharing information about an individual, she said "giving all the information may not be the right thing, each case has to be looked at individually"
Imogen went on to say "If you are a danger to yourself and others - information has to be shared"
She finished her presentation by saying "Balancing the right of a person to have privacy with keeping a person safe is what has to be considered".
Improving information sharing whilst ensuring patient confidentiality for children and young people My experience as a Caldicott Guardian & Paediatrician
Dr Sarah Aylett
Caldicott Guardian & Consultant Paediatric Neurologist
Great Ormond Street Hospital NHS Foundation Trust
• information sharing in children’s services: applying the Caldicott Principles
• what issues do I see as a Caldicott Guardian? Examples in practice
• issues around consent and information sharing with relatives
• challenges around young adults
Sarah discussed her role as Caldicott Guardian at Great Ormond Street Hospital. She said "We are trying to work in partnership with our children and families"
She went on to discuss electronic patient records that they use and how children from age 12 can access with parent consent and then from 16 they have access and can decide who else can access their records".
Sarah then talked through a number of case studies with examples of information sharing.
Concluding her presentation Sarah said "The rapid increase in the electronic use of data brings ethical and practical challenges and opportunities, It is important to hold the best interest of the child and young person central to the role".
